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Build Awareness. Empower Patients. Grow the Registry. Save Lives.
On Demand Episodes
Episode 1: What is sickle cell disease?
We chat about sickle cell disease basics with pediatric hematologist Staci Arnold, MD, hear sickle cell warrior Genesis’ story and learned about the barriers and disparities that sickle cell warriors face from the Health Equity manager at Be The Match.
Episode 2: Living with sickle cell disease'?
We chat with a Be The Match Patient Navigator and Social Worker and heard from the founder of MTS Sickle Cell Foundation.
Episode 3: The future of sickle cell disease
We'll cover transplant and gene therapy with Staci Arnold, MD and a certified genetic counselor from Be The Match. Hear about our policy efforts for sickle cell disease, meet sickle cell warrior Dakhiyon, see how Nia Franklin, former Miss America is advocating for sickle cell patients and watch a live swab event!
The Sickle Cell Connect series aims to connect sickle cell warriors with the resources and support to learn more about sickle cell disease and treatment options. This series has been created by Be The Match® to build awareness of sickle cell disease, empower patients, grow the Be The Match Registry® and to save lives. You’ll hear from nationally known sickle cell disease physicians, listen to other warriors who have sickle cell disease and get answers to your sickle cell disease questions. Know that you’re not alone in this journey.
Meet our Sickle Cell Warriors
Genesis
A warrior through and through, Genesis shares what it’s like living with sickle cell disease.
Dakhiyon
A young sickle cell warrior’s mother shares her story of finding new ways to help her son.
Ruby
A toddler warrior’s journey with sickle cell and her hope for finding a match.
You could be the cure for these sickle cell warrior's.
About Be The Match
For people with life-threatening blood cancers—like leukemia and lymphoma—or other diseases, a cure exists. Be The Match connects patients with their donor match for a life-saving marrow or umbilical cord blood transplant. People can contribute to the cure as a member of the Be The Match Registry®, financial contributor or volunteer. Be The Match provides patients and their families one-on-one support, education, and guidance before, during and after transplant. ​ Be The Match is operated by the National Marrow Donor Program® (NMDP), a nonprofit organization that matches patients with donors, educates health care professionals and conducts research through its research program, CIBMTR® (Center for International Blood and Marrow Transplant Research®), so more lives can be saved. To learn more about the cure, visit BeTheMatch.org or call 1-(800)-MARROW-2.